Section 1

Emotions & Relationships

In this section:

About this Section

If you are reading this, your child or someone you know has been diagnosed with a genetic condition. Life may be taking a different path than you imagined. You may be feeling a range of emotions. Not every person feels the same thing. There is no right or wrong way to feel during this time.

Navigating Emotions

Emotions may change from day to day, or even hour to hour. You may feel a wide range of emotions, and it can be a struggle sometimes to manage these.

Navigating Emotions

Coping Techniques

There are many ways to deal with the emotions you feel after your child’s diagnosis. What works for one person may not work for another. It is important to identify ways to manage your emotions and stress in ways that are healthy for you.

Coping Techniques

Family Relationships

How your family is impacted depends on many things, such as your child’s condition and severity, family coping skills, financial means, and other resources. A child with complex medical needs may put extra demands on the family system, often for an extended period. As with any other major life event, your family will learn to adjust and adapt over time

Family Relationships