Finding Support & Information

Educating yourself and getting reliable information will help you feel more in control of your situation. With the Internet, families have more information than ever at their disposal. There are many resources in your community, your region, your state, and online to help your family.

There are ways to find support as you go through this journey. There may be people in your area you enjoy spending time with, or you may choose to connect with others online. You may be able to meet parents who have a child with the same diagnosis. Talking to someone who has gone through similar circumstances can be emotionally uplifting.

It can be difficult to balance the demands of home and work. Understanding the challenges posed by your situation can help you be proactive. You can explore options with your current employer to determine how to manage this.

Taking care of yourself is often difficult when you have a child with complex care needs. But it is important to actively engage in activities to nurture ourselves and build resiliency.