Section 4

Getting Medical Insurance

In this section:

About this Section

You may find that having a child with a genetic condition will suddenly require you to become an “insurance expert.” This can be difficult. Insurance coverage is complex. Navigating insurance is one of the main challenges parents face. Find people who can help you. It is like learning a new language. With practice, you will learn how to navigate through insurance issues.

Getting Help with Insurance

You may find that having a child with a genetic condition will suddenly require you to become an “insurance expert.” This can be difficult. Insurance coverage is complex. Navigating insurance is one of the main challenges parents face.

Getting Help with Insurance

Getting Additional Insurance

Having enough health care coverage may be another challenge. Some families find that having a child with complex medical care means a lot of medical bills. Exploring different options for additional coverage may include Medicaid, CHIP programs, and Title V programs.

Getting Additional Insurance